My life would obviously have been easier if I had been born normal. However, being born with Ehlers-Danlos Syndrome (EDS) and having to learn how to overcome the problems associated with that disease is what helped me to find my inner strength. The hardships I suffered gave way to my most precious experiences of rising up with renewed vigor.
I have what is known as “Type 1 EDS”. This genetic disorder involves a defect in the body’s ability to synthesize collagen, and it affects one in 20,000 to 50,000 people. The skin of people like me who have this form of EDS is very stretchy and fragile, and our excessively flexible joints are always painful and prone to dislocation. In addition, we bruise easily and our healing processes are slow.